We take the same picture each year - the tree's growing and so is he!
Lola started back with her program at GRIT this week, with her Developmental Specialist, Deannie. Deannie is so great with Lola, and I'm excited for all the new experiences they'll have this year - because they're heading to preschool! They went on Tuesday and Lola did great! She read books, ate her snack, played, then listened to a story! I'm so proud of her.
We're still waiting to start the Ketogenic diet - we saw the neuro who oversees the diet, did our intake dietary report/food diary, and had our labs drawn at Ivig on Friday. Now we're waiting for the call and we'll be staying at the hospital for a week to get things started. I don't think Lola will enjoy being inpatient again - I'm dreading it so much. This diet's going to be tough on her for a bit - but if the end result is fewer seizures and less meds, we'll do whatever we can.
The race that Steve planned in Golden (Western Cup at Kicking Horse Mountain Resort) was a huge success. He worked so hard to plan that event, and it all paid off. Lola's account got a boost to pay for her music therapy, as well as some developmental/physio tools that we have on our wish list (we're just deciding which ones to get). Her biggest thing - she'll be getting an ipad! How exciting! I've been doing so much research on communication and special needs apps that will help her to find her voice. It's going to take us some practise to figure it out though, no doubt! Anyway, we are so thankful for the volunteers who came out to support Lola at the race - especially Theresa, Gayle, Holly, Doug, Tenzin, Thuptin and everybody else who was lucky enough to stay at our house on the mountain. Now if only we owned that sweet place. ha. We're already talking about next year!